Mia’s Story
My name is Mia, and I'm here to share my story about complex regional pain syndrome (CRPS) in the hope that it will inspire others to do the same. Sharing our experiences can help create a sense of community, belonging, and understanding for those of us coping with this challenging condition.
It all started with what seemed like a minor injury when I was 10 years old – a hairline fracture of my ankle during a game of tag at summer camp. Initially, I didn't think much of it, but the pain lingered and intensified, spreading up my leg. Within weeks, the pain was so severe that I needed crutches to walk.
The doctors I saw were baffled, and despite trying numerous therapies, nothing seemed to work. Eventually, I was diagnosed with CRPS. I love learning, being active, and spending time with friends, but my enthusiasm dwindled as the pain took over. I even started missing school. My parents, desperate for solutions, brought me to the Boston Children's Pediatric Pain Rehabilitation Center (PPRC).
The PPRC offered a rigorous multidisciplinary day program that included physical therapy, cognitive-behavioral psychology sessions, and occupational therapy. I learned valuable coping strategies, such as distraction techniques, to manage my pain. One of the things that motivated me during my time at the PPRC was the record board highlighting patients' achievements. I was determined to get on that board, and I set an ambitious goal for myself: to be able to walk without crutches.
After five weeks at the PPRC, I had the tools I needed to manage my symptoms and return to my life at home, including school. Amazingly, I was able to ditch my crutches and earn a spot on the record board!
My experience at the PPRC was truly transformative. It gave me hope and showed me that I could regain control over my life, even with CRPS. My family was so inspired by my progress that they decided to give back and help expand the reach of the center and help patients like me navigate the challenges of returning to school after treatment.
I believe that sharing our stories is a powerful way to connect with others who understand what we're going through. By creating a community of support, we can empower each other, offer encouragement, and reduce the feeling of isolation that often accompanies chronic pain conditions like CRPS.
So, I encourage you to share your story. You never know who might be listening and who might find strength and hope in your words.
TIPS AND RESOURCES
Sharing your story can help you connect with others and find strength in knowing you’re not alone
Use this link to learn more about the Boston Children’s Hospital Pediatric Pain Rehabilitation Center